Perspectives and links

I found another blog where someone posted the following about Ushers:

"To most it's the stuff of nightmares; as one father wrote on his blog after reading about the condition while researching what might have caused his son's deafness: 'Usher syndrome gave me the experience that the cliche calls 'chilled to the marrow'. It's a cold start, a real glimpse of horror.'"

It's an interesting perspective. I'm not sure I would say that I am chilled to the bone by my genetic condition. I mean I have it and I'm learning to live with it. The process of losing my eyesight and possibly more of my hearing is not fun and I wouldn't wish it on anyone, but it's my life. It's my reality. It's not that bad. The part that is hard for me to deal with is the fact that I am limited because I can't drive. I want to go to grad school for my Ph-D but I'm not sure I will be able to because I have no transportation. I have applied and we'll see what happens, but will I be able to accept the position? I absolutely abhor the limitations placed on my by Ushers syndrome but not the disease itself.

It is scarey and most people can't fathom what it is like to have a dual sensory loss. But the part that they really can't understand is the limitations put on me by a world that does not accept the disabled very easily. I am capable of doing many things but I am not able because in a world that relies on mobility I don't fit. Of course I am working on changing that for myself.